St. Louis

As requested an update on our trip to St. Louis. We went to visit the friendly Cardinal Glennon Children's hospital. First, they did a scope procedure to make sure Maci is built correctly on in her upper airways. She is perfect - no toys, erasers, food, etc in her lungs. I didn't know until after the procedure I should have been wishing for an eraser. I guess some kids swallow object, aspirate and get them lodged in their lungs causing all kinds of crazy problems. Then after they remove it the kids are all better. Not Maci.

Then after the scope we went and picked her up and headed to recovery. (So far Maci has had no food or drinks since midnight the night before...) They put her IV in after she had smelled some strawberry gas so the good news is we didn't have to go through that drama. However the IV was causing her much distress. She kept saying it was bothering her. So in and effort to take her mind off of it we had to review our sticker collection we received from the different nurses. We had to wait several minutes to make sure we were able to do a swallow test. After many request for milk we FINALLY we able to move on to the next thing. The best thing about this hospital is all our appointments are on time or EARLY! I think our swallow test was around 1 p.m. We thought it might be an issue for her to drink the magic milkshake. However, when you starve her she was ready to drink it before the doctor was there to read the x-ray machine. He finally arrived and Maci drank the milkshake like it was the best thing she had ever had. Her test all looked fine. We got her dressed out of her little hospital nightgown and were ready to get the heck out of there. BUT before we could leave Maci asked if we could take her milkshake with her. She was officially the first patient to ask to take the nasty thing with her!

We quickly left and took her for some great macaroni and cheese with a big old glass of milk. We were all starving. We didn't eat or drink in front of her - so we also had nothing to eat or drink.

So all is well with Maci structurally so we have to continue on our quest to figure her out. All in all Maci is a great patient.